Renaissance Home Health Care and Renaissance Adult Day Services are dedicated to quality care by helping people in the Greater New York area who need assistance due to ALS. This year our team will walk in honor of our very own, Jamie Luchs. Jamie is a social worker here at Renaissance who adored her younger brother Jonathan Weinberg who fell victim to ALS. Here is her story.
“My brother, Jonathan Weinberg, was two years younger than me. We come from a relatively tight-knit community, so we went to a small private school from the time we were in nursery school through to high school. He was always just two grades behind me. We even went to the same summer camp and eventually, the same college. We fought like most siblings, and I wasn’t thrilled to always have him around like that. It wasn’t until we got older that we really bonded, and I realized how special he was.
I had a profound respect for my baby brother Jonathan. He had an amazing memory and he loved talking to people. He really listened to what they had to say and he remembered everyone he met. Jonathan was always so bright, super smart, witty and optimistic. Jonathan remained genuine and down to earth and grew to be very successful.
Even when he suddenly lost the function of one of his legs, a few months after his wedding in 2012, he tried to downplay the obvious impairment and joke about it. The next ten months were a rollercoaster. The one thing he could never seem to bear was thinking people were worried about him. We did worry, though. The average life expectancy of a person with Lou Gehrig’s disease is 2-5 years from diagnosis. The disease is marked by the progressive death of nerves along the spinal cord, eventually resulting in the loss of motor control and lung function. We watched Jonathan’s condition deteriorate rapidly- his decline was atypical, especially considering his young age of 31. He joked and kept the mood light, in true Jonathan form, even when he lost the ability to speak. His Home Health Aides always got a kick out of him.”
Jamie’s brother died on June 19, 2013, less than 1 year from being diagnosed. He had planned to keep fighting. But suddenly he was gone. While nothing could ever truly ease the pain of his loss, TEAM RENAISSANCE is committed to raising money to support people in our community with ALS and spread awareness of the urgency to find treatment and a cure. Please consider joining TEAM RENAISSANCE in the Walk to Defeat ALS® or choose a team member from the list and donate to our cause.
Thank you for helping us to reach our fund raising goal! Together we can make a difference in the lives of those affected by Lou Gehrig’s disease.
More About ALS – Often referred to as Lou Gehrig’s disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe.
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
This crippling disease can strike anyone. Presently there is no known cause of the disease yet it still costs loved ones an average of $200,000 a year to provide the care ALS patients need. Help make a difference and donate or join a walk today.